I write letters, rally, protest and meet with those that make decisions about our daughter's care on a local, state and federal level. For me though, my new project, One Day, is my brand of advocacy. Looking at details differently, I love to bring a narrative to individuals in a unique way.
When Caleigh was born prematurely with the rare birth defect, Gastroschisis, my outlook on life shifted dramatically. I became more aware of everyone around me. The naive bubble was gone. My creative process stalled for many years as I tried to comprehend our new life with a medically fragile child. The barrage of diagnoses and surgeries didn’t quit when we rolled out of the hospital and it’s still an adjustment to this day. Finding time and energy to feed my needs was and is a huge challenge.
In 2015, I started to save and collect the massive amounts of plastic medical waste that we had been recycling and discarding. I knew that this waste was important to me, but back then I didn't know why. The shear amount of it interested me.
When I started my graduate degree last year, I was able to work through the process of collecting with my professors and other important artists in my field. With my first year of graduate work complete, a refreshing research trip to Italy and two years of collecting; I have clarity on the waste material and the importance that this project will have in large numbers.
Here's where you come in!
Volunteers are asked to collect ALL waste material used in the care of their medically fragile family member(s) during a 24-hour period. One Day. This could include recyclable material, packaging, feeding supplies, and medications. As well as needles, vials, port or central line care, suction, and trach supplies. Diapers, pull-ups and wipes are excluded.
No amount of material is too small or great and this is definitely not a competition. As a narrative, I know how surprised I was by how much we discard each day.
At this time, I’m asking that medically fragile kids, 21 and under, participate. At a later date, I will open this request to adults.
The underlying purpose for this very important and ongoing project is to give a voice and a visibility to an often overlooked minority. With ideas of consumption, identity and both personal and political advocacy; I envision an increased awareness for our community.
By participating you will receive a digital file of your One Day project to share throughout social media, letters to your representatives and others. Basically, whatever you feel like! You will also receive 1 - 8x8 artist proof of your collection.
Writing and putting things out into the world has power. I have lofty goals that include hundreds of participants from all over the world and I believe that we will get there. I need your help, please share with your friends, FB groups and family to get the word out!
Questions? Email me @ firstname.lastname@example.org
Visit hollydgray.com/one-day for more details