Made of Gray

2 steps forward 1 step back

201 Days in the NICUHolly D Gray6 Comments

Caleigh in her new bed. The hanging syringe feeds her using her tube and gravity.

The past couple of days since my last post have been wonderful. Caleigh started none nutritive breastfeeding and she was doing great. We were nursing 2 times a day to help her get used to it and she was really catching on. She was taking 2 bottles a day like a champ, the rest of her feeds were through the feeding tube, and her milk intake had increased to a whole ounce!

Unfortunately, today Caleigh had another set back. She hadn't had a bowel movement since yesterday at 5am and her tummy is swollen again. Plus her stats haven't been great. Her heartrate and oxygen intake drop periodically. After lots of x-rays and blood work, the docs decided that she needed blood, antibiotics and a decrease in her feeds. She is also getting suppositories every 6 hours to try to get things moving again. They can tell on the x-rays that there is stool in her bowels and hopefully we will have lots of poo again soon. Tomorrow they will start some diuretics to help with swelling and fluid retention caused from the blood she received this afternoon. Caleigh has also been having trouble holding her temperature on her own. So they put her in a radiant warmer bed that helps control her temp. When premature babies get sick or don't feel good their temperature goes down. So instead of running a fever they go the opposite direction. She actually did the same thing with her temp right before her last surgery which has almost been 3 wks ago.

We are praying for poo again. It is terrible to sit and watch her grunt and groan because her tummy hurts so bad. Oh how we wish we could take the tummy troubles away. 2 steps forward and 1 step back seems to be the phrase of the day with the docs. The roller coaster continues. I will update as soon as we know more. We really appreciate everyone's continued thoughts and prayers.

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