Made of Gray

MDCP - Bridgeport

Holly D Gray1 Comment
Tonight, Eric and I will be taking Caleigh to Bridgeport to stay in their local nursing home for 8 hours. From 4:30pm to 12:30am, May 30th - 31st. Why you may ask? Well that's what I'm here for.....

So there is this program, Medically Dependent Children's Program (MDCP). We have been working on the paperwork since we left the NICU and we all know a government program is a slow process no matter what it is. Ok here's a brief summary of the program.....You call get on the 'list' which has a three year waiting period. After that you fill out tons of paperwork and wait.......

A mother, a very smart mother, found out about a program that allows someone to take their elderly loved one out of a nursing home to care for them in their own home. The government then puts that elderly person on Medicaid, gives them respite care, any adaptive equipment needed and home modifications. She put her child in a nursing home and then brought the child home therefore qualifying her child for all the above resources. And there begins the MDCP and the loop hole which will allow Caleigh to have these resources until she is 18 years old.

You basically have to enter the nursing home on one day and check out the next calendar day. There are only 3 or 4 of these nursing homes in the area. Grandbury's nursing home wouldn't accept Caleigh because of her severity and their liability. So we went with Bridgeport out of necessity. It will be a long night for all of us, but it needs to be done. When we get back home we shouldn't have to worry about what our insurance will or won't pay anymore and we won't have to spend our days fighting with people over the phone........as much.

Caleigh is doing ok, we have had to back off on her feeds here lately. We were at 7 ml an hour and we are down to 4 ml. Her reflux has been really bad to the point that she doesn't really want her paci anymore. Retching, coughing and dry heaving all the time. We have asked our surgeon to look at Caleigh's fundoplication during the surgery to see if it has loosed up. She has actually started burping occasionally, which she shouldn't be able to do. We finally reached the 13 lb mark this week, whoa!

I'll let everyone know how the nursing home trip goes......

If anyone has questions about getting on the program please contact me and I can give you some contact info.
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