In Pitt..... can you believe it? When we got on the plane, Eric and I looked at each other and said "I guess we are really going this time." Hard to believe but here we are sitting in our hotel room in Pennsylvania. Which might I add, is a lovely area. Older homes, very eclectic with a lot of history. Lots of rolling hills and beautiful trees. Daytime highs in the 70s and night time lows in the 40s.......quite nice.
Our plane ride was donated by a very...very...wonderfully, gracious family whom we can not say thank you enough to. A private plane, 3 person crew, the Gray's.....priceless. This was such a blessing. Having a short gut kid on a plane is a nightmare. Make that a commercial flight and you've got issues. Caleigh, herself did really well. She loved all the bouncing and jerking of the take off and landing. Mom didn't, but Caleigh did! Caleigh even took a nice long nap during the 2 and a half hour flight. There was a couple of crying spells, but not too bad. On the flip side of this, there's the short gut stuff. 3 dirty diaper changes, 1 g-button dressing change, 3 doses of medicine, 1 feeding pump cycle completed and the tons of equipment we had to take on board with us. I can't even imagine having to do all of that in a tiny coach seat. Plus don't even get me started on the possible germs......Like I said, a huge blessing. You know who you are.....THANK YOU!
So as I type we are spending the night together as a family in our hotel room. Tomorrow morning we will go to the Children's Hospital of Pittsburgh and they will admit Caleigh at 10am. She will be in the hospital, inpatient, until Friday at noon. Only one of us will be allowed to spend the night in the room with Caleigh. So the other will be at the hotel getting some quality sleep, maybe. During the next five days there will be meetings, procedures, tests and more meetings. All of this just to find out if Caleigh is a candidate for a small bowel transplant.
Hopefully, I can keep up with the blog during this week. Thank you for all the thoughts and prayers. We're praying that we get some answers to our questions and at least get a different perspective on things. Wish us Luck!