Made of Gray

All the other stuff

Holly D Gray5 Comments
Here's some extra stuff that I've been thinking about lately.

Caleigh finally got her Special Tomato Chair. I used it as a high chair for one day and then scratched that idea. She refused to eat while in it. ugh.{don't you just love the enthusiasm?}

After some thought, I decided to try it in my BOB jogger. Jackpot! It works perfectly and now Caleigh can sit up to see the world. We've been going for walks everyday and I really do love the time spent outside our fortress of hibernation.
{happy to be outside}

We also bought Caleigh an excer-saucer about a week ago. She has been wanting to put weight on her legs lately and I thought it would be a good idea to have something like a stander without the medical equipment hanging out in our living room and hanging over our heads.{this look sums up the whole week}

Last night Caleigh got her third tooth, a molar. I'm not sure where this one came from. I thought all of her discomfort was from her top front teeth trying to come through. I was wrong and now she has 3 teeth.

Caleigh hasn't been sleeping well either. Probably from the teeth issue. Unfortunately, when Caleigh doesn't sleep well, none of use do. I'm exhausted. I hope Caleigh's gums give us a break for a few days or at least the nights.

Feeding has slowed to a crawl. I'm disappointed in the regression. At this point we are just playing with food and holding spoons. I've upped the tube feeds and cut back on eating by mouth. With Caleigh teething, we don't want her to associate the pain with eating by mouth. Feeding has become a battle. So right now we are in a holding pattern. ugh, again.

I've been asked to do an interview over at 5 minutes for special needs. Look for that coming up soon.

I never mentioned it, but the ads that you see to the left of this post are there as potential revenue for Caleigh's blog. So far we've made a little over $20 a month since applying them to the blog. Not a lot, but more than nothing. The money goes straight into Caleigh's account. You can find out more about the BlogHer network by clicking on the links to the left.

A few posts back, I put a link to Benik. This is the company Caleigh's pediatric gloves will be coming from. They spotted that I linked to them and asked if they could put a little blurb about Caleigh and her use of their product on their home page. I said yes. So go take a lookie over on their home page. Make sure you scroll down to the bottom.

Hibernation - Quarintine is getting to me. Tells of RSV and FLU have kept me focused, but honestly I might go crazy. I used to be pretty spontanious pre-Caleigh. It stinks that I can't throw (not literally) Caleigh in the car and run to the grocery store. This is the point during RSV season that parents start to feel ancy and give in to those temptations. I've gotten a little loose with my restrictions lately. I must resist. So for now our outings will stay close to home. Around the block, to the grandparent's house and appointments will have to do for now.

I've made plans to go to the 'What to do about your brain injuried child' lecture in Philadephia. I leave the day after the March for Babies walk in April. It will be the first time I am away from Caleigh. The lecture lasts for 5 days and I have high hopes for learning vital information to help Caleigh achieve many of her goals. I'm sure I will be posting more about this closer to the trip.

My brain has been racing lately. I wake up in the middle of the night with tons of thoughts in my head. I feel like we have beaten Short Bowel Syndrome and with that comes more time and energy to focus on Caleigh's develpmental delays. This leaves my head spinning. I want to beat cerebral palsy and everything that it intels. I need to take one day at a time and stop thinking about the future so much. I need to push myself out of this winter funk.

Tomorrow, Caleigh has her 18 month check up and on Thursday we have an appointment with a new eye doctor to get a second opinion on things. We missed a lot of therapy appointments while Caleigh was sick. So this week and next week we will be craming in as much as possible before the end of the month.

Sorry about the whining. Exhaustion makes me really cranky. I'm off to bed now.

Until next time....
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