We were discharged in record time this morning and made it home by noon. We really didn't have to twist the on-call GI doc's arm at all. Weird, huh? All of Caleigh's labs were still good this morning and they only had to stick her twice for the draw. We really enjoyed not having to wait on home health for all the supplies or even having to stop at the pharmacy to get new meds. It was quick and painless. Oh, how things have changed!
Caleigh is doing well. She is all smiles. As soon as we got home we laid her down for her regular nap time. She slept for 3 hours and Eric and I slept for 2. We all needed some peace and quiet.
We just hung out the rest of the afternoon. I've been cleaning things and disinfecting. Our ER doctor told me that the swine flu hasn't been in the ER for 2 weeks, but I'm still being cautious about all the other stuff we are trying to avoid.
Caleigh is now on 50ml an hour for 24 hours a day. This sucks because she is always hooked up to her tube. We plan on pretty slowly getting back to the 5 boluses of 200ml a day. One day at a time though. We worked so hard to get her eating what she was by mouth and on a more normal schedule, but we are pretty sure she will get there again soon.
Poor girl has bruises from head to toe. Hopefully they won't last long. The arm that they finally got an IV on looks terrible. We had it wrapped very tightly so that we wouldn't lose it. It worked wonderfully, but it's really badly bruised and of course the skin is broken down from the adhesive on the tape which is a normal occurrence for our sensitive skinned girl. I'm hoping it doesn't last long.
We are SO happy to be home. Here's to sleeping in our own bed!
Photo taken last week in Caleigh's new Ikea Ekorre swing