Made of Gray

3 years post STEP

Holly D Gray3 Comments
Today marks 3 years since Caleigh had her last intestinal surgery, the STEP procedure. STEP stands for Serial Transverse Enteroplasty Procedure. We nearly lost Caleigh following this surgery. We spent a month in the hospital, but overall, Caleigh's life took a turn towards the better because of this surgery. We can't believe it has been 3 years. 3 years....wow.
Life isn't perfect, but Caleigh's quality of life is 110% better since the surgery. The rare occasional need for TPN and elemental formula tube feeds are the routine. Eric and I will definitely take that over the alternatives. We can't believe that at one point we were talking intestinal transplant. To see the way Caleigh has grown from her own nutritional absorption is just an amazing miracle. Functional short bowel syndrome. We'll take it.
MAYmemorialday
The scars are still very real both physically and emotionally. Caleigh's beautiful torso is a daily reminder of her struggles. I touch her belly everyday and tell her just how gorgeous her tummy really is. It's truly my favorite part of Caleigh's body. Emotionally we truck on, but never forget.

Absolutely no regrets.

When life gives you a hundred reasons to cry, show life that you have a thousand reasons to smile.
- Unknown
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