Made of Gray

Insta Friday

Holly D Gray3 Comments
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Caleigh has been swimming every single day. At least for an hour if not two. It's wonderfully amazing.
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For the past month or so, Caleigh has been going through cycles of not sleeping well at all and then times where she is exhausted. As I type, she's in an exhausted period. I know she has grown some during this time. Her shoe size has gone up and she seems taller. Her muscles are all tight and she seems frustrated with it most of the day. Hopefully, things will calm down soon.
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Caleigh is doing so well with school lately. It helps fill the gaps in our day between swimming and therapy. Even though most kids are out for summer now, we are going to continue on. It's a good pace and Caleigh asks to do more than I usually plan each day.
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We've been going to the library at least once a month if not twice. With all of the school related reading we go through our stack of library books slower than we used too. As soon as read through them though, Caleigh is asking to go to the library again.
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Before our trip to Austin and San Antonio we bought a new child carrier at REI. We've been looking at these for a couple of years and I regret not buying one sooner. Most of the time Caleigh's head lays on Eric's shoulders but ever so often she will pick it up really well. We took Caleigh on a three and a half mile hike the other day. It's only the second time she's been "off road" hiking. She did great. Eric deserves some major kudos here because I can't carry Caleigh in the backpack. It's just too heavy for me. He says he is getting a good workout and I believe him!
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Ferb is still a fully functional member of our family. We gave him a bath the other night and deep down he is really just a very hairy rodent. He's reaching bunny adolescence and becoming a bit of a pill though.
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I signed up for a homeschool group through Meetup. They do several things a week and take field trips often. I was pretty pumped about it. Through the group I found out that our local library was doing a story time at the municipal airport with a little tour added on. I signed up, but was put on a wait list. The night before the event I got a call that a spot opened up. With no time to talk it up to Caleigh we jumped in the car early the next morning. I talked to her the whole way there. Five minutes in the story and Caleigh flipped out. She caused a scene and had every little girl her age giving her the ugliest looks I've ever seen. The women from the group that I was supposed to meet there never came up to introduce themselves. I didn't know what they looked like, but they knew Caleigh uses a wheelchair. I was pretty heartbroken with the whole thing. After talking to Caleigh when we left she said "because I can" "I don't like it." So I grounded her from her music the rest of the day. It was our first official grounding. Timeouts seem a little young for Caleigh at this point. It worked. By the end of the day she told me "I love you" I'm sorry" "I want to listen to music." She got the idea. The next day she was an angel. What set her off, I will never know. Having a non-verbal child can be so hard sometimes. So incredibly hard.
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With that little story, I leave you with more swimming photos. Here's to better sleep, relaxed muscles and the end to frustration for our girl.
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