Made of Gray

Room 3, again

201 Days in the NICUHolly D Gray6 Comments

Caleigh 2 days ago. She even sleeps just like daddy!!!

You know that feeling....the one you get deep inside your gut that just keeps coming up no matter how hard you try to ignore it? Mommies intuition, gut feeling, GOD yelling at you from the inside. When they moved Caleigh to room 2 it started. I pushed it back down trying to be positive. When she moved to room 1, I started to analyze my feelings more, still trying to stay optimistic. Yesterday, I almost spoke up about moving her back to room 3, but I decided not to. Of course it wasn't anything against the room, or new neighbors, or nurses. Everyone has been amazing with our family, but I kept getting the feeling that Caleigh wasn't ready ....... that we weren't ready for the move ..........

This morning I woke up early, so I decided to go to the hospital a little bit earlier than usual. When I got there and went to change Caleigh's diaper I noticed that the area around her central line in her chest was red and very puffy. Caleigh was fussy and her temp was warm for her. We called the nurse practitioner, who called the doc on call. Dr. Sidebottom decided to take Caleigh's central line out and try a regular IV for the day. He couldn't get a great stick on her arm so he had to put one in her head. Caleigh now has a baby mohawk because he had to shave both sides to see where he could get a good vein. It looks horrible but it is a great vein on babies. They gave her some pain meds and took out the CVL. The CVL (central line) gives Caleigh her nutrition intravenously. This is the TPN and lipids (fats) that I have talked about. It's very important for her to have a line especially since her feeds aren't very high yet. So they sent off a ton of blood work looking for infection and we are waiting on that to come back. Some of the lab work did come back and she needed a blood transfusion. So they started that this evening and it is normal for preemies to need this especially if they aren't getting full milk nutrition. Dr. Sidebottom started Caleigh on antibiotics and seems to think that she just outgrew the line. She's more than tripled her size since birth and these things happen. They will want to put another central line in soon and that requires surgery, but until then, they are going to put a pic line in. It is a temporary version of the central line, and it is more prone to infection than the CVL. She needs her fluids and these are the steps we need to take. Now we just sit and wait for signs of infection, necrosis and effects from the fluids leaking into her chest. Hopefully, we won't see any of these signs........that we are just experiencing some growing pains. So Caleigh is now in room 3b where mommy thought she should have been all along.

Caleigh's new room with a view. Yep, that's a window in the corner.

The gauze on her chest is where the central line was. When they go to put a new one in they will have to put it on the other side.

What we would love from everyone is prayers. Thoughts and prayers to continue on. God only gives you what you can handle goes through my mind daily. We still feel strong with only weak moments and I know this is how Caleigh feels too.

When opening my fortune cookie tonight it read: 'Be both a speaker of words and a doer of deeds.'

GOD whispering to me again.

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