Made of Gray

SPML - The Unexpected Return to the Texas Coast

Raising the Rare Child, Traveling w/ DisabilitesHolly D. GrayComment

Three nights. We made it three nights before Caleigh’s short bowel syndrome caused issues with her SPML casts. Her guts had shut down during surgery on Friday. Sunday mid-morning they thankfully woke up, but wouldn’t stop or slow down. 

Sunday night into Monday, Caleigh woke up with liquid stool from head to toe. The “to toe” part was the issue. It was in her cast. We cleaned it as best we could, I threw all the laundry, including her knee immobilizers into the wash and we went back to bed. 

The next day I started making phone calls and we soon had an appointment in Galveston the following afternoon. So we were home for two days before loading up and heading back to South Texas. 

We arrived at Dr. Yngve’s clinic and they removed the offending cast. The stool had soaked up to her ankle and with it being so acidic we were grateful for a quick removal. Dr. Yngve made sure the angle and area was okay and then she got another purple cast. Caleigh is healing as expected. Her bruising is normal and her need for tylenol is becoming less.

We booked a hotel room on the ocean this time around and made the most of our one night on the coast. The sun was warm, but the wind was gusting 20-40mph the whole time. We didn’t explore as much as we would have otherwise. Maybe we’ll inspect the coast a bit more for Caleigh’s four month follow-up. 

At bedtime, we now put Caleigh’s knee immobilizers on over her casts and then wrap four gallon trash bags over those. She wakes up sweaty, but at least they are protected from any other diaper mishaps. 

Give or take 1200 miles... the Lesson was Learned.



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