Made of Gray

Normal Kid Stuff

Little Hairy Dog Costume

Adaptive ProductsHolly D GrayComment
Little Hairy Dog Costume via Hacking Disabilities

Earlier this month I asked Caleigh what she wanted to be for Halloween. With her iPad and Proloquo2Go she typed out "little hairy dog." 

This was big news in our house because Caleigh has wanted a version of a fairy for the past three years. I have no clue where the idea came from, but I'm so glad she got creative. 

So it had to be hairy. Dalmatians, or any other random puppy wasn't going to work. I did a quick search online and found a lot of scary werewolf costumes and one cute werewolf costume from Pottery Barn. I ordered it pretty fast because Pottery Barn is known for their out of stock disappointments. I went online and ordered some brown tights and a brown t-shirt, created a bow and called it good. 

Little Hairy Dog Costume via Hacking Disabilities

She had the best time this Halloween. I updated the Halloween page on her iPad. She could tell everyone Happy Halloween, I'm a Little Hairy Dog, Trick or Treat, Thank you, I'm having fun, I'm bored. I also added sounds that a dog could make. Caleigh repeatedly said "Woof Woof" "Aaaaar" and "Aooooh" all night long and practiced heavily for days leading up to the big event.  I love adding sounds to her words and frankly she loves using them. 

Little Hairy Dog Costume via Hacking Disabilities

This was the most interactive year of trick or treating that Caleigh has ever had. Something about dressing up helped her break through the shyness. I love progress! 


Related Posts Plugin for WordPress, Blogger...

The Day She Broke Her Nose

Raising the Rare ChildHolly D Gray2 Comments

This weekend involved a regular kid accident. This wasn't short bowel syndrome, cerebral palsy, or dystonia. This was an accident. Something that could've happened to anyone.

The Day She Broke Her Nose via Hacking Disabilities

Eric took Caleigh for a bicycle ride on Saturday morning. This happens in her Chariot bike trailer and Caleigh loves this time with her Daddy. She loves to go fast. I was working on planning her 3rd grade homeschool year at the house when I got a call from Eric. They were less than a mile down the street and I needed to come get them. 

The bike trailer had clipped the curb and flipped over while the bicycle stayed upright. Eric estimates that they were going about 10 miles an hour. Caleigh was wearing a 5 point harness and the mesh trailer top was in use. We own three helmets. She wasn't wearing one. 1) because it doesn't stay on her head with her constant dystonic movements 2) because we can't get the dang thing to stay on her head. We've tried. Period the end. 

I arrived less than 2 minutes and scooped our girl up, panicked about the blood a little bit, and then got her strapped in her car seat. We went back to the house where I cleaned her face as much as I could. I changed her clothes and mine, got her food hooked up and we headed to the ER. My typical adrenaline routine is all business in these situations and it held this time too although Eric says I was a little grouchy. 

Once we got there, they gave us a red dot and took us straight back to triage. The first doctor we saw ordered a nose x-ray and a thumb x-ray. They did vitals and then took us back to the trauma rooms. We went right away to do the ordered x-rays. Once we were back in the room, another doctor came in and started examining Caleigh. She was more subdued than normal and in a lot of pain. When he pushed on her forehead she started crying so he told us that he was going to proceed with the car wreck protocol to rule out anything internal. 

We took Caleigh in for a pelvic and chest x-ray and then a head CT. We didn't have to wait too long for the doctor to come in and let us know that everything looked fine except the fact that Caleigh has a fractured nose. 

Our Baby Broke Her Nose. 

The Day She Broke Her Nose via Hacking Disabilities

We were in and out of the surprisingly empty ER in less than 3 hours. Caleigh came home with a prescription for hydrocodone for nighttime and tylenol during the day. She has slept incredibly well since the accident thanks to the meds.

Today her pain is better. The swelling is down and the bruising is starting to really show. We have an appointment with her pediatrician this week and we'll also be seeing an ENT, once the swelling goes down, to make sure that nothing inside the nose was damaged. If there is a problem inside the nose then we will meet with a plastic surgeon and talk corrective rhinoplasty. I can't even think that far ahead. It makes me nauseous honestly. I'm praying that everything is ok inside that sweet little button nose of hers. 

So our darling daughter had a regular kid accident. The bike crash theory was always in the back of my mind. I wouldn't be a mom if I didn't worry about every little adventure, but we can't keep Caleigh in a bubble either. 

When I asked Caleigh if she wanted to go bike riding with Daddy again she immediately said "yes" on her iPad. I admire our strong girl and her constant need for fast adventure. 

PS. I'm saving you the gory hospital photos and playing with light and shadow in these images so that you aren't as nauseated about this as I am.


Related Posts Plugin for WordPress, Blogger...

North Texas Snow Day

Raising the Rare ChildHolly D Gray1 Comment

Today handed us some seriously wild and crazy North Texas weather.

No worries though...Spring is just around the corner. Like this coming Tuesday. 

We turned around on our way to OT early this morning because it had started snowing and mostly because people can't drive. I'm glad we did because the roads and traffic just continued to get worse all morning. 

It snowed all day which is crazy in itself. This is Texas people!

All in all we got about 2-3 inches at our house. 

Late in the afternoon we bundled up and headed out to create the one and only snowman of the season. Renn even got in on the fun and ate about a ton of snow doing so. 

This time Caleigh looked like the kid in A Christmas Story. You know the "I can't put my arms down" kid. Three shirts, three pants, three socks, hoodie, hat, coat, mittens, boots. She sat up in her power chair better than anything I've ever seen. There was a lot of trunk support happening!  

We stayed outside for way more than an hour. Caleigh cruised around, Eric and I built the snowman, we dressed the guy and then headed inside right before we lost all feeling in our hands and it got dark. 

Our toes and hands were frozen, but we had a lot of fun. In all my life I don't remember building such a large snowman. It should be fun to see how he melts over the next week. 

So many were stuck out on the highway for hours on end just trying to get home. I'm extremely thankful that our little family was safe at home and all together to enjoy the snowy white day. 


Related Posts Plugin for WordPress, Blogger...

North Texas Sleet Day

Raising the Rare ChildHolly D Gray7 Comments

What do you do when North Texas is shut down on account of some sleet? 

You bundle up, and crunch ice in your power chair like a princess. 

Caleigh has been doing really well driving her chair with the joystick. Today was a great day to enjoy it too! We added new stickers and cleaned it up before we headed out in the cold. 

She lasted about 30 minutes before she was ready to come inside. 

Today taught me that we aren't even prepared for the cold of Pittsburgh and Boston. -9 and below isn't even on our radar. Today it was 27 degrees and we were chilly. Our Texas attire just doesn't seem to be enough. Depending on our trip timing we will need to stock up on warmer clothes for sure. 

We haven't had anything that really resembles winter so far this year so we were about due. Hoping you are warm and snuggly this evening and enjoying time with your family. 

Related Posts Plugin for WordPress, Blogger...