Made of Gray

Rooming In

One for the money

201 Days in the NICUHolly D Gray2 Comments

Caleigh & Daddy taking a nap together

Caleigh is feeling much better with a few days of antibiotics in her. They do bloodwork that measures her CRP levels to check and see if there is infection. Caleigh's level was at 17 and is now back down to 8. So the antibiotics are working and getting rid of the infection. Her G-button site looks better as well.

After we gave Caleigh a bath, we sat down to play with her. She loves her Daddy!

Sadly enough Caleigh seems to be a much happier baby when we aren't feeding her. She's more bright eyed, interactive, and generally just in a better mood. Eric and I also started doing her CVL dressing changes. This is a big deal because there has to be a sterile field. I never knew how difficult it could be to put gloves on without touching them! It takes a team to hold Caleigh's pacifier, hold her arms down and talk to her while another person actually does the dressing change. Caleigh's CVL is her life line right now and cleanliness and proper techniques are very important. We don't need any infections. There has been talk of her going home on the TPN and that is why we started doing the dressing changes ourselves.

We have been working with Caleigh to start holding her paci in her mouth and to also bring it to her mouth when it falls out. She doesn't have it down without some help still but she is learning really well so far.

I've also been asked a lot 'where did you get that pacifier holder?' Well, I got it at Target and it's called the Soothie Pacifier Attacher. In one day alone Caleigh had spit 4 pacis on the hospital floor. Once it hits the hospital floor there is no saving it. So the nurses would have to go get another one. I would be interested to know how many soothies we have been through.....maybe 40 by now! The adorable, large, pink flower has saved us and she hasn't needed another paci since we got it.

Tomorrow, we will be seeing all of our regular doctors and maybe the GI doctor as well. We have soooo many questions for the GI doc...poor guy! There was talk about trying to feed again on Monday but we will just have to see if she is ready.

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Rooming In

201 Days in the NICUHolly D Gray6 Comments

Yesterday, Eric and I roomed in with Caleigh. It was nice to be in our own room without all the noise of the NICU. We started the morning off with a bath and then OT came and worked with Caleigh. Of course she was worn out from the bath so she fell asleep pretty quick after that. We held her all day and dad and I took turns cat napping which was nice. The day went really well and I think it was really good for all of us to have that time together.

Caleigh is still spitting up and today the docs put a transpyloric tube down Caleigh's nose instead of the NG feeding tube that she normally has. The new tube bypasses her stomach and goes straight to her intestines. Instead of orange it is yellow and it is a little bit harder than the orange one. This will be able to tell us if Caleigh is having reflux or if her stomach is backing up with formula. We should know this in the next day or two. So far Caleigh isn't getting very much milk at all and what she is getting she is spitting up so she really isn't getting any nutrition from the feeding process. Basically, it's not working which leads us to the next step.........

So, tomorrow Eric and I will sit down with all of our doctors to do what they call a care conference. Yep, it's Caleigh's first parent - teacher conference! We are going to go over the options and most likely set a time for the next surgery. The main thing is what to do once they get in there and what the outcomes might be. There are several options and every case is different so we will just have to see. I think it will be good to sit down and go over some goals and hopefully we will feel better after we talk to everyone.

Here's a video of Caleigh holding her head up like a big girl. Of course she was more interested in the window than the camera!

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